Showing posts with label illness. Show all posts
Showing posts with label illness. Show all posts

Sunday, March 22, 2015

Zero!

As in, "How many radiation treatments are left?" That's right - today is Day 3 post-radiation of my DCIS journey. On the final day, FryDaddy came with me to meet my treatment team (who really were just fabulous throughout the entire process) and see me ring the bell that they have for folks on their final day of active treatment. My techs gave me a glowstick necklace to simulate the superpowers that (sadly) never manifested - turns out that comic books lie about that part - and drew a funny picture on me that made the (ahem) affected area look an awful lot like Jeff Dunham's puppet Peanut. And there was, of course, cake and celebration.

So yes - 33 treatments over six-and-a-half weeks have come to an end. (Yay! Cheers! And the crowd goes wild!) I'm not done yet - I have frequent follow-ups and five years of tamoxifen ahead of me, but this endeth the active stage of treatment. It'll take a little while for me to heal from it all - I'm burned and the healing involves itching, peeling and overcoming the fatigue that comes with 33 doses of radiation dangerous enough to the healthy to be delivered in a room that could withstand a nuclear attack - seriously, the door to the treatment room is a good foot-and-a-half thick. Therefore, I'm not planning on doing much beyond my day job for at least the next two weeks (and I hope to do large chunks of that from home). I'm using Easter as my marker. It seems appropriate to use that day of joy and resurrection as my new starting point.

Back before I realized that I was like everybody else, and would therefore have side effects from radiation treatment (seriously, I'm not always the brightest bulb in the chandelier), I signed up for a 5K Color Vibe run with a friend who's never done a 5K before. That seemed like a great thing to do. The Color Run was my first 5K a year ago, it's untimed and tremendous fun, and it was the official "coming out" of my jobbling persona, the Dancing Sloth - I was eager to share that experience. But the event is next weekend and I'm not in any kind of shape for running. Well, that's okay. There will be very little running from this Sloth, but I expect to walk the route and get doused with color and cheer on my friend. No doubt about it, I'm starting my training over pretty much from scratch (and I'm not really starting anything until Easter), but that's okay. I understand things differently now and part of what I understand is that I'm still a runner, even if I haven't run in a while. You have to take time off to heal from injuries, whether those injuries are running-related or not, and by my calculation, cancer treatment counts.

Other changes are also indicated, especially in diet and stress reduction, and these are areas FryDaddy and I plan to work on together. Much work remains to be done but wow! am I glad to be moving forward! Let me once again give a shout-out to everyone, everywhere who's been part of this with us. Whether it was your willingness to wear a colander on your head, whip up dinner for us, tend to the Spookinator, rake the yard, pray, meet for coffee, send cards - the list of kindnesses that let us know that it wasn't just us against the world goes on and on and on and on. And I don't know that I can adequately express how much it all matters. It really, really did - and does! I've learned so much about kindness, compassion, and (weird as it sounds) joy over the last few months and I'm grateful for the lessons, although I still dislike the teacher.

Be kind. Everybody needs it - especially the ones you don't think deserve it.


Sunday, July 20, 2014

Not Even An Isthmus

In one of his most famous poems, John Donne claimed that "no man is an island" and he was right. No matter how independent you may think yourself to be - and independence is a good quality - we are social creatures and we need other people. I've had some time to reflect on this over the last few days and I am even more convinced now that this is so.

Earlier this week I had some minor surgery done. Doctors aren't entirely sure why I have scar tissue in my windpipe (probably some sort of reflux, but tests weren't conclusive), but there it is. Scar tissue can be cut away, but it always grows back and as it grows, my airway narrows and my breathing is affected. I also start to cough a lot to clear away junk that most of us don't think twice about - a healthy windpipe has teensy hair-like structures to help propel phlegm and crud up and out whereas scar tissue is smooth and those structures are absent. Exercise exertion seems to both help and serve as a canary in this coal mine, so we keep an eye on things through an uncomfortable scope procedure that I'm very grateful for, and every few years (it had been three years since the last time; six weeks since the most recent scoping), I have to get my trachea "rotor-rootered." It's not fun, but it's pretty routine and low-key. Still - general anesthesia is not a joke, although I try to yuk it up as they get me ready. I was first diagnosed at Baptist Hospital (now called Wake Forest Baptist Medical Center, but it's still "Baptist" to most North Carolinians) and I continue to go there for treatment. Yeah, it's a little out of the way from where I live now, but it's a top-notch teaching hospital and I make my living talking and teaching other people how to talk, so I'll keep going there thankyouverymuch.

Recovery from this procedure isn't too bad - everything is done with lasers, not scalpels, so there's very little blood or discharge - but I'm tired, sore, and achy for a few days and can't really do too much for myself for the first day and a half. (Interesting facts to support this point - anesthesia can make you super-cold and shivery for the first several hours post-discharge, the compression thingies they put on your legs to prevent clots can make your calves sore to the point of making walking uncomfortable for the first two days and your innards are likely to be strangely out of whack for two to three days.) While you're not covered up in bandages and bruises and stitches, your body's gone through some trauma and you're not exactly Little Miss Marathon.

Enter other people. Oh, let me explain just how much NOT an island I've been the last few days, for there is nothing (emphasize that - nothing) like being sick to make you appreciate other people. I can't list all the kindnesses I've received over the last five days or so, but let me try to capture the flavor of compassion.

  1. My surgeon cuts on Thursdays, so I had to miss a day of my turbo-speed summer school class. Far from celebrating "woo-hoo, teacher's gone!" my summer class made me a "get well" card on the sly to give me before I left for surgery last week. Totally spontaneous and heartfelt and I made sure it was propped on the dresser top so I could see it from the bed. 
  2. My parents went full-out Florence Nightingale for me. Every food that I even thought might be tasty they had in full supply. I go whole-hog Southern for my comfort food, so I've been consuming pimento cheese by the tubful and sweet tea by the half-gallon.
  3. My parents live in a century-old farmhouse, obviously built before air conditioning. The rooms are gracious, airy, and peaceful. I loved sitting on the breakfast porch and just watching the antics at the bird feeder. Plus, one night a doe came up out of the woods to graze in the pasture. Best kind of reality TV.
  4. Ensley tore up the road between our home and my childhood home, tending to our sick kitty (she's on antibiotics and won't come out for just anybody) then coming up to make sure I wasn't pushing things too hard the first few days.
  5. Having a little in my iTunes account to treat myself to gemstones in "Midnight Castle," a found-object game I spent a lot of time playing over the last couple of days. (Anybody playing that - friend me!)
  6. My minister - who's brand-new herself in town - kept up with me through social media and made sure to relay support and kind words.
  7. Friends.  Oh, friends. Neighbors who offered to look after the critters, Facebook friends from close by and across borders and oceans - I had dozens and dozens of people checking in on me, wanting to know if I was okay, if there was anything I needed. It feels good to know that I'm connected like this, not just drifting on the air currents like a discarded grocery bag.
  8. Being well enough to drive home, but still not have to do anything. Yes, there will be work tomorrow and errands and all the things that come with modern First World life and I'll be better suited to face them following three solid days of rest.

It's true - I'm not an island. I'm not even an peninsula or an isthmus. And what a wonderful thing that is. Think of it this way - you know who's truly independent? The poor schmo you see leaving the hospital in a cab. He can't drive himself and there's no one to pick him up, take him home, and get him settled, much less check in on him to make sure he's comfortable post-surgery. That's not independent; that's just sad.

Thanks to all who made sure I knew I wasn't an island.